Stephanie Briggs - Handmade Knitting My Way Through Chronic Pain

Knitting by hand, owned by three cats and a manbeast

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CNN: The [disabled] airline passengers getting ‘unacceptable’ treatment

26th November 2022 By stephanie

CNN has dropped an article in an ongoing expose of the way disabled people are mistreated when it comes to airports. It’s not just happening in America – it happens all over the world.

Traveling alone from Amsterdam to Manchester, I was once dumped in my airport wheelchair at a cafe in the Schipol airport, between connections, and when nobody on staff came to collect me to my next gate (as promised), I had to ask a fellow cafe patron for help. 😳 I knew exactly where I needed to be and when – I just needed help getting there.

Another time, on a different trip on my own, when I was waiting in line for security check in my chair, the security agent asked the group of people behind me if I was traveling with them – ignoring me and speaking only to them, right over my head. It was as if I didn’t exist, or at least, they assumed I was incompetent enough to not be traveling alone. I had no idea who they were, and informed security of it.

Filed Under: Uncategorized Tagged With: disabilities, travel

Shingles Thoughts at 41

10th August 2022 By stephanie

I am 41 years old, and I was diagnosed with recurrent shingles, on my perineum (the chicken pox virus settled in the spinal nerves S2, S3 and S4, which enervates this area of the body) a few years ago. I’ve had it three times in 2022 alone. All the tests show my immune system is “fine”, but we also know that the immune system is INCREDIBLY complicated. I had chicken pox as a child, and it remains in my body.

The burning pain spreads down my right buttock and the back of the thigh.

Unfortunately, in the UK, the shingles vaccine is not licensed to be given to patients under 50. If it was, I would get it in a HEARTBEAT.

Until the mess of Brexit, I have seriously considered traveling to a country where it is licensed to give to younger people (France, US, Canada). I am a dual Canadian-UK citizen, so traveling to Canada would be one option. However, geographically speaking, France would probably be the easiest – if it were not for the COVID pandemic and Brexit.

My GP does the best he can by giving me daily acyclovir, for maintenance, and I have carte blanche to raise the dosage for about 2 weeks at a time when it flares up: I call this a “blast dose”. It helps.

But I’m incredibly frustrated about the lack of licensing for younger patients. The rationale for it seems to be that the vaccine works less well for those under 50, so there wasn’t a market to license it for younger folks.

As a geneticist friend of mine put it, it makes no sense to deny treatment to an age group just because it “may” be less effective”. What if it were more effective than they thought? They’d never know without trying – assuming any side effects of the vaccine were nothing to worry over.

Filed Under: Uncategorized Tagged With: chronic pain, disabilities, pain

My (Informal) Autism Spectrum Test Results Overlap with My Cerebral Palsy

14th October 2021 By stephanie

Taking this test was diagnostically problematic for me. However, for the following overlapping reasons, I was curious enough to take it. It feels like there’s a great potential for confirmation bias, especially given my already-existing knowledge of psychological disorders, plus the biological and medical reasons for various symptoms of my cerebral palsy (CP). There’s a […]

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Filed Under: Uncategorized Tagged With: autism, cerebral palsy, disability, psychology, social psychology

Movie Review: “The Monster of Mangatiti”

30th August 2019 By stephanie

WARNING: Based on a true story, docudrama “The Monster of Mangatiti” depicts the sexual enslavement of 19-year-old Heather Walsh in remote rural New Zealand in 1985. If you’re a survivor of rape or sexual assault, you may wish to watch it with support. It’s frightening and explicit.   Despite my own history of sexual assault, […]

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Filed Under: Uncategorized Tagged With: films, movie reviews, PTSD, sexual abuse

Horse Racing and Human Sport: The Fatal Mistake of Overtraining Young Athletes

10th June 2019 By stephanie

A 29th horse has died “of a heart attack” at the Santa Anita track, the 29th such death there since 26 Dec 2018. What does worry me in horse racing is something that surely human athletes have dealt with ever since the first Olympics in Greece: overtraining, too fast, too soon, when the horse/human athlete […]

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Filed Under: Play Tagged With: figure skating, horse racing, horses, Sergei Grinkov, sports

Disability, “the patriarchy” and feminism

16th August 2018 By stephanie

When you grow up with a disability like cerebral palsy, you’re often seen as having no gender at all. You are “sexless”, because all anyone sees is your disability. You’re less often a part of the sociocultural milestones that girls go through, and less able to rely on them for a sense of cohesion. It […]

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Filed Under: Play Tagged With: disabilities, women

Chronic Migraine – GPs’ and Neurologists’ Different Approaches to Treatment

18th February 2017 By stephanie

Not all prophylactic medications work for all migraine patients, and it can take some time to find the right one. Took me 13 years.   GPs know squat about treating migraines; they really are only allowed to go through a standard long list of prophylactics, which may or may not work. Typically, you are titrated […]

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Filed Under: Uncategorized Tagged With: Botox for migraine, chronic pain, migraine, migraines, neurology

EEEEEK! She’s baaaaack! Periods are Annoying

3rd December 2016 By stephanie

I’m 35 and my periods have always been really super-crampy. As in, cramps that leave me curled up in a ball on the floor, whimpering. After years of not having it, thanks to birth control pills, this week I find myself hosting an unwelcome visitor because of a pharmacy mix-up. AUNT FLO  So, to cope, […]

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Filed Under: Play Tagged With: menstruation, pain, periods

Why I’m NOT Wal-Mart, and How Tara Swiger Helps Crafters

16th November 2016 By stephanie

Tara Swiger, Starship Craftybiz Captain, taught me a LOT about selling your handmade art – whatever that might be. Remember – “You are not Wal-mart! And that’s why we love you.” She has offered many different online courses and groups to help handmade marketers. “Bake Sale Marketing” and her “Starship Craftybiz” are two of the courses […]

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Filed Under: Work Tagged With: art, handmade, knitting, starship craftybiz, tara swiger

October is Domestic Violence Awareness Month, and Why “Fifty Shades” is About an Abusive Relationship” by Jenny Trout

19th October 2016 By stephanie

October is Domestic Violence Awareness Month. I’m very aware that DV doesn’t end on October 31. Normally, I’d say “Shove it!” to most Internet awareness campaigns, but this one has a much wider net because people were duped into thinking that “Fifty Shades of Grey” is a love story.   It’s not. It’s about an […]

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Filed Under: Uncategorized Tagged With: abusive relationships, books, domestic violence, fifty shades of grey, sexual abuse

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About Me

I've been knitting since I was ten, I have a frightening number of books, and love watching "Air Crash Investigation" while I knit with a cat in my face.
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